Updated: Jul 13, 2019
I'd like to introduce myself.
I'm a Spoonie, a Zebra, a POTS Warrior.
I've been living with Chronic illness for four years now, since I was 20. My story goes like a lot of yours will. A pesky virus hit, I got better but not really, then I got worse. The trips to the Dr started and they never stopped. Three and a half years later, there I was with a laundry list of diagnoses, and barely able to walk out my front door.
It's been one hell of a ride - I've had the Drs who tell me I'm crazy, I've experienced what it means to be treated like an actual animal by actual human beings. I've also had some truly fantastic people fight for me in ways I can't even begin to thank them for.
My life isn't what I thought it would be four years ago. I'm a different person. But - I'm also pretty darn lucky. I have a shit load of support, and a frame of mind that somehow just keeps getting me through. Believe me - the two go hand in hand.
I've learned a lot in this chapter of my life. And I want to share it. I want to help people like me get through. Maybe you're someone with less support. Maybe you're at the beginning of this winding journey and you want to know how to survive. Maybe you're one of those bona-fide heroes that's reading this page because you want to help someone you love. If you're any of those people - stick around.
I intend to keep posting survival guides, how-to's, anecdotes with some humour to get you through a rough night. I want to post what I never found in my fruitless google searches of "how to cope with chronic illness". I want to help.
I also want to talk about what doesn't get talked about. Ehlers-Danlos Syndrome just doesn't get spoken about enough. Nor do it's associated conditions. I want to be one of the people changing that. I have the courage, I'm gonna shout loud!
So come along for the ride!
Click here to see part one
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